Technologies for Caregivers of Children in Palliative Care

A Scoping Review

Authors

DOI:

https://doi.org/10.70368/n7zc9p62

Keywords:

children, Parents, Family members, health tecnology, Palliative Care

Abstract

This study aims to map the types of existing technologies aimed at parents and family caregivers of children in palliative care. This is a scoping review conducted between March and April 2025 in the databases Medical Literature Analysis and Retrieval System Online (MEDLINE/PubMed), Virtual Health Library (BVS), Scopus, and Scientific Electronic Library Online (SciELO). Sixteen studies were included, most of which were published in the United States and Australia between 2018 and 2025, all in English. The study types varied within the sample. The majority of the identified technologies were applications, but other types were also found. The mapping identified different technologies that contribute to supporting parents and family caregivers of children in palliative care through education about self-care, management of their family member’s condition, monitoring, and emotional support throughout this process.

Author Biographies

  • Evilania de Souza Soares, Universidade Estadual do Ceará

    Assistente Social Hospital Infantil Albert Sabin e Hospital e Maternidade Zilda Arns Neumann. 

  • Vera Mendes, Ceará State University

    She holds a Bachelor of Nursing degree from the Federal University of Ceará (1982), a Master's degree in Nursing from the Federal University of Ceará (1998), a Ph.D. in Nursing from the Federal University of Ceará (2001), and completed postdoctoral research in the Graduate Program in Collective Health at the Federal University of Ceará (2017). She is an Associate Professor M at the State University of Ceará in the undergraduate nursing program. She serves as the vice coordinator of the Professional Master's Program in Transplants at the State University of Ceará. She is a researcher in the research group "Epidemiology, Care in Chronic Conditions, and Nursing" (GRUPECCE). She has experience in the field of Nursing, with an emphasis on Adult Health, Nursing Education, and Epistemology, working in both undergraduate and graduate programs, mainly focusing on the following topics: nursing, nursing care, palliative care, chronic conditions, cardiology, heart transplantation, and family. She also holds a Bachelor's degree in Law from Faculdade Farias Brito.

  • Karliene Vieira, Ceará State University

    She is a doctoral candidate in Clinical Care in Health and Nursing at the State University of Ceará (UECE), holds a Master's degree in Health Education from the State University of Ceará (UECE), has a Specialist Title in Adult Intensive Care Physiotherapy from ASSOBRAFIR, is a Specialist in Cardiopulmonary Physiotherapy from the University of Fortaleza (UNIFOR), and a Specialist in Dermatofunctional Physiotherapy from Estácio University (FIC). She works as a physiotherapist in the Coronary ICU at Messejana Hospital and as a physiotherapist at the Dr. José Frota Emergency and Urgency Hospital (IJF). She is a member of the Cardiac Illness Research Group at UECE.

  • Danielle Simão, Ceará State University

    She holds an International Specialization in Quality in Health and Patient Safety from the Oswaldo Cruz Foundation (FIOCRUZ); a Specialization in Family, A Systemic Approach from the University of Fortaleza (UNIFOR); and a Bachelor's degree in Social Work from the State University of Ceará (UECE). She has been a public servant working as a social worker in the municipality of Fortaleza since 2004. Since March 2013, she has served as the coordinator of social work services in a hospital unit. She worked for 18 years in a therapeutic community for substance dependents, gaining experience in individual counseling, group activities, coordination, and technical supervision focused on drug misuse prevention and chemical dependency treatment. She has also been involved in the development and coordination of social projects, management of grant accounting, and has coordinated the monitoring of social programs, projects, and professional qualification initiatives.

  • Luciana Quixadá, Ceará State University

    I completed a postdoctoral fellowship in the Graduate Program in Psychology at the Federal University of Pernambuco, a Ph.D. in Education from the Federal University of Ceará, with a sandwich period funded by CAPES at the Université de Toulouse-Jean Jaurès, a Master’s degree in Psychology from the University of Brasília, and a Bachelor’s degree in Psychology from the Federal University of Ceará. I am an Associate Professor at the State University of Ceará (UECE), affiliated with the Psychology program, and a permanent faculty member of the Graduate Program in Clinical Care in Nursing and Health (PPCCLIS/UECE). I coordinate the Laboratory of Participatory Studies and Research on Childhood, Culture, and Subjectivity (LINCS/UECE). I lead an international cooperative research project with professors and researchers from UECE, the Université de Sherbrooke (Canada), and Aix-Marseille Université (France), with financial support from CNPq. I also coordinate an interinstitutional doctoral program (DINTER) between PPCCLIS/UECE and the National School of Health of Guinea-Bissau, approved by CAPES and starting in 2025. From January 2023 to May 2025, I coordinated the Youth and Participatory Research Working Group of the National Association of Research and Graduate Studies in Psychology (ANPEPP). I am a member of the National Association of Researchers on Brazilian Youth (Rede JUBRA). I have experience working with children and adolescents in situations of violence and social vulnerability. My main research topics include mental health; child and adolescent health; processes of symbolic mediation and subjectivation; decolonial studies; childhoods, youth, and participatory research.

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Published

2026-05-05

Issue

Vol. 3 (2025)

Section

Review Articles

Categories

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Copyright (c) 2026 Evilania de Souza Soares, Vera Lúcia Mendes de Paula Pessoa, Karliene Vieira Silva, Danielle Simão de Figueiredo, Luciana Martins Quixadá

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This work is licensed under a Creative Commons Attribution 4.0 International License.

How to Cite

Technologies for Caregivers of Children in Palliative Care: A Scoping Review. Gestão & Cuidado em Saúde, Fortaleza, v. 3, n. 1, p. e15846, 2026. DOI: 10.70368/n7zc9p62. Disponível em: https://revistas.uece.br/index.php/gestaoecuidado/article/view/15846. Acesso em: 10 jun. 2026.

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